Kidney Appointment

Sorry that this is a little overdue. I've had a pretty busy couple of days, and that has made me really tired! Anyway!

The ultrasound showed that Bentley's kidneys are pretty much the same except they are even larger than last time. The Dr. said that this is a trait of the disease and it will eventually taper off. I asked to see if it was harmful or causing any pain and the Dr. said that it wasn't. I'm thankful for that!

About a week ago I found a toy Dr. kit at Babies R Us, so I bought it for him to practice getting his blood pressure taken. It help tremendously! He got a little nervous, but he didn't cry at all when they took his blood pressure. They are trying to follow his blood pressure closely because of his hypertension, so I was extremely grateful that he did so well. Thankfully, he is on the high end of normal so we are safe right now. The Dr. said most children with the disease have to go on a blood pressure medicine and it will probably be likely that he will have to too. I'm praying that he won't have to.

All of Bentley's blood work came back looking good. His kidney function is fine. There was one test that came back high, the Alkaline Phosphate-- which is an enzyme that the bones and liver produce. The Dr. said that he would call the GI to find out what she wanted to do about it. His Vitamin D levels were fine, which was one thing that GI had us on a Rx for (an extremely high dose for a short time).

It was a good visit. The next step is genetic testing for Bentley and a 3 months follow up with the Nephrologist. There we will get the script for the genetic testing and more bloodwork. In 6 months we will have another ultrasound.

We are just thankful that right now he is still stable. The doctor's seem pleased with his growth, weight gain and development. God had been very kind to us!