Since the middle of April Bentley has thrown up one morning every 6-9 days. He wakes up around 6am with sharp pain and then vomits 2-3 times and is normal, literally back to normal by 10AM.
This particular episode, he woke up at 6am, vomiting and continued to vomit 5 more times. Every time he took small sips of water, he would throw it back up. He had gotten to the point where he was throwing up green bile, and that is when we got concerned. But by the time all phone calls were returned and we were at the ER and then finally seen by the ER Dr. It was 9am and he had turned the corner, the Dr. saw nothing wrong with Bentley and sent us home. Always my concern with bring them to the ER! I think that Dr. thought we were over-reactors by some of the comments he made. Oh well, my hope is to never see him again :)
I explained to him that I had been charting these episodes and that we were going to the GI soon. Which in return said that they would be able to pin point better what tests to do, because he wasn't going to do random tests to try and find something, which I can appreciate.
Marseille has a GI appointment on Tuesday, which the Nephrologist told us to bring up Bentley in that appointment. All the Nephrologist's testing came back stable, so he is thinking the GI can help us. So we shall see :) Praying that we can have some clue as to what's going on with little to no testing.
Many of you have asked how you can help and how we are doing. We are really doing fine. God's grace truly is sufficient in our time of need. I have not felt overwhelmed or discouraged by any of this. It's definitely not fun, but it's a part of my life! We don't have any needs at the moment. Because these episodes are so far apart, we are still able to get around and do things, even the day that he has them (though we usually don't do anything those days!)
One thing that I do ask is if you are interested in watching Marseille while we have testing and the like done, please email me. This maybe spontaneousness as well as planned. Thank you!!
3 comments:
so sorry nikki!!! i hope the GI appointment is helpful! xoxo
Nikki, thank u for sharing all this! I am going to really be praying for u especially this week. It's amazing to c the strength God is giving u and ur trust and reliance on Him. Thank u for ur great example!
I'm so sorry that you & your sweet little ones are going through all of this, Nikki! I am praying for God to give you His grace & strength every day! I love you!
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